Hello from a newbie with a perfume problem
Question:
> Lisa, the first case I read of severe acute reaction to Intal happened to a > small girl, upon her first puff of the drug in her doctor’s office. How > long ago did this happen to you? > I’m just as pleased you missed the name of the toothpaste. The reaction > happened decades ago – and, I shouldn’t have mentioned the name of the > product anyway. > Larry
The fall of 1998. I was curious to the ingredient in the toothpaste not the brand. I am also allergic to barium (for UGI’s). It too is supposedly inert. However, something it is mixed with also causes a severe reaction. I can do iodine though. Go figure. Lisa
Response:
> I was too superficial, wasn’t I. Your experience is recognized, but has been > reported very rarely, and my failure to mention it was a major error in > judgement. The allergy caveat should be applied to everything. the most > surprising episode I have seen myself happened after using Maclean’s > toothpaste. > Larry
No problem. I wished the Intal worked. What was in the toothpaste that caused the reaction? Lisa
Response:
>> I was too superficial, wasn’t I. Your experience is recognized, but has been > reported very rarely, and my failure to mention it was a major error in > judgement. The allergy caveat should be applied to everything. the most > surprising episode I have seen myself happened after using Maclean’s > toothpaste. > Larry > No problem. I wished the Intal worked. What was in the toothpaste that > caused the reaction? > Lisa
Lisa, the first case I read of severe acute reaction to Intal happened to a small girl, upon her first puff of the drug in her doctor’s office. How long ago did this happen to you? I’m just as pleased you missed the name of the toothpaste. The reaction happened decades ago – and, I shouldn’t have mentioned the name of the product anyway. Larry
Response:
– Hide quoted text — Show quoted text -> Sorry you have had that experience, Pete. The drug is benign, and there > literally is no lethal dose. It was the first great advance in asthma > therapy after inhaled bronchodilators, was used extensively in those years > (was it the 70s?), and I can think of no reason why one should not try it. I > have prescribed it many hundreds of times of times, even before it became > available in the US, and have been pleased with it as a pre-insult > medication in about 50% of the patients. Try Intal, Florrie. > Larry > Hi Larry, > Intal put me in ICU for a week. One puff shut me down completely. My > doctor had me try it in his office before sending me home with a > script. Within minutes, I was in respiratory distress and came quite > close to a full blown code. Trying it in his office probably saved my > life. By the way, I had just finished a PFT and was breathing in the > 90% range. I was having problems with running and he suggested adding > Intal to my medications. It definitely wasn’t benign for me. The stuff > almost killed me. > Lisa
I was too superficial, wasn’t I. Your experience is recognized, but has been reported very rarely, and my failure to mention it was a major error in judgement. The allergy caveat should be applied to everything. the most surprising episode I have seen myself happened after using Maclean’s toothpaste. Larry
Response:
> Personally, all that "fluffy" powdered Intal hitting the back of my throat > would generally precipitate a coughing bout which would cause a severe > asthma attack in its self
As with any other medication, Intal is not for everyone. I have had anaphylactic reactions to both Intal and Tilade. Joan
Response:
Thanks for the suggestions everyone. I will definitely ask my dr about the Intal, thanks for the idea. It would be good to have a medication as a back-up at least while I’m trying to deal with the people problem.
Response:
> Sorry you have had that experience, Pete. The drug is benign, and there > literally is no lethal dose. It was the first great advance in asthma > therapy after inhaled bronchodilators, was used extensively in those years > (was it the 70s?), and I can think of no reason why one should not try it. I > have prescribed it many hundreds of times of times, even before it became > available in the US, and have been pleased with it as a pre-insult > medication in about 50% of the patients. Try Intal, Florrie. > Larry
Hi Larry, Intal put me in ICU for a week. One puff shut me down completely. My doctor had me try it in his office before sending me home with a script. Within minutes, I was in respiratory distress and came quite close to a full blown code. Trying it in his office probably saved my life. By the way, I had just finished a PFT and was breathing in the 90% range. I was having problems with running and he suggested adding Intal to my medications. It definitely wasn’t benign for me. The stuff almost killed me. Lisa
Response:
– Hide quoted text — Show quoted text ->> Hi everyone, I’m new! I’m 30, female, asthmatic since 3 years old >> with varying degrees of severity, currently moderate and relatively >> well controlled with medication most of the time. > <snipped> >> Thanks for any help and I hope you’re all feeling well at the moment. > Use Intal (cromolyn sodium) 30 minutes before entering the house, and > every > four hours during continuing contact. You can perfectly safely continue > using all of your other medicines at the same time. > Larry > Perhaps Larry ought to have added some caveats to his post, along the lines > of – "you might try", "this works for me" or "DISCUSS WITH YOUR PHYSICIAN". > Personally, all that "fluffy" powdered Intal hitting the back of my throat > would generally precipitate a coughing bout which would cause a severe > asthma attack in its self
Sorry you have had that experience, Pete. The drug is benign, and there literally is no lethal dose. It was the first great advance in asthma therapy after inhaled bronchodilators, was used extensively in those years (was it the 70s?), and I can think of no reason why one should not try it. I have prescribed it many hundreds of times of times, even before it became available in the US, and have been pleased with it as a pre-insult medication in about 50% of the patients. Try Intal, Florrie. Larry
Response:
– Hide quoted text — Show quoted text -> Hi everyone, I’m new! I’m 30, female, asthmatic since 3 years old > with varying degrees of severity, currently moderate and relatively > well controlled with medication most of the time. <snipped> > Thanks for any help and I hope you’re all feeling well at the moment. > Use Intal (cromolyn sodium) 30 minutes before entering the house, and every > four hours during continuing contact. You can perfectly safely continue > using all of your other medicines at the same time. > Larry
Perhaps Larry ought to have added some caveats to his post, along the lines of – "you might try", "this works for me" or "DISCUSS WITH YOUR PHYSICIAN". Personally, all that "fluffy" powdered Intal hitting the back of my throat would generally precipitate a coughing bout which would cause a severe asthma attack in its self
So…… either divorce hubby (not recommended) or divorce his familly ’til their house trained! Pete
Response:
– Hide quoted text — Show quoted text -> Hi everyone, I’m new! I’m 30, female, asthmatic since 3 years old > with varying degrees of severity, currently moderate and relatively > well controlled with medication most of the time. > Since I have been living with asthma virtually all my life I haven’t > faced too many problems I couldn’t handle but this one is troubling > me. > I recently married into a family in which all the ladies feel the need > to douse themselves in perfume, hairspray and goodness knows what > else, and not just on special occasions either. They’re also big fans > of room freshener. Naturally as luck would have it I react to all > these things and suffer for hours (sometimes days) after a visit to > the in-laws. I did a search and noticed a lot of you have the same > problem and I was wondering how you deal with it when avoiding the > people concerned is simply not a solution. > Unfortunately they are not the world’s most helpful people and haven’t > picked up any subtle hints (eg me reaching for the ventolin and my > hubby suggesting the prob might be all the fumes!) so I’d like ideas > for managing the situation. My MIL has a friend with severe asthma > and maintains that if this lady can manage at her house, I can – but > I’ve spoken to the friend and her asthma is intrinsic and/or weather > related, not allergic. > Thanks for any help and I hope you’re all feeling well at the moment.
Use Intal (cromolyn sodium) 30 minutes before entering the house, and every four hours during continuing contact. You can perfectly safely continue using all of your other medicines at the same time. Larry
Response:
– Hide quoted text — Show quoted text ->Hi everyone, I’m new! I’m 30, female, asthmatic since 3 years old >with varying degrees of severity, currently moderate and relatively >well controlled with medication most of the time. >Since I have been living with asthma virtually all my life I haven’t >faced too many problems I couldn’t handle but this one is troubling >me. >I recently married into a family in which all the ladies feel the need >to douse themselves in perfume, hairspray and goodness knows what >else, and not just on special occasions either. They’re also big fans >of room freshener. Naturally as luck would have it I react to all >these things and suffer for hours (sometimes days) after a visit to >the in-laws. I did a search and noticed a lot of you have the same >problem and I was wondering how you deal with it when avoiding the >people concerned is simply not a solution.
I have fragrance allergy (or more likely sensitivity). I have learned that subtlety does not work. I have a sign over my cubicle telling people to leave and use the phone if they are wearing strong perfume or cologne and I bluntly tell them that I am allergic to their perfume and somebody else will have to help them. >Unfortunately they are not the world’s most helpful people and haven’t >picked up any subtle hints (eg me reaching for the ventolin and my >hubby suggesting the prob might be all the fumes!) so I’d like ideas >for managing the situation. My MIL has a friend with severe asthma >and maintains that if this lady can manage at her house, I can – but >I’ve spoken to the friend and her asthma is intrinsic and/or weather >related, not allergic.
Simply tell your MIL that you and her friend are different people with different asthma triggers. And that If she continues to wear the strong fragrances she will not be allowed in your home. There are times to be nice – but not when your health is on the line. "It’s not American foreign policy, or the plight of the Palestinians, or America’s longstanding support for Israel. A group of people with money and weaponry have simply decided that we, as a civilization, are unfit to live, and want, eventally, to exterminate us." ‘Christian Century’ magazine
Response:
I would draw a line in the sand – one has to do this with one’s in-laws from time to time. I would let your husband be the point person and, if I were you, I’d be completely silent. Make it clear that, if they want the two of you at their house, they’ll refrain from doing things that cause you to have trouble breathing. It’s that simple. We’ve had a few such encounters on both sides of our family, each of us being the point person for the other and, after a few tense times, it’s all worked out very well. FWIW, I’m very perfume sensitive but most relatively expensive perfume bothers me much less than the inexpensive stuff, e.g., I can almost be in the room when my wife applies Chanel No. 5 – she gets it now for her birthday from me and the kids – but the cheaper stuff she used to buy for herself was just unbearable – it would be at least half an hour before I could enter the room, or so it seemed. -S- – Hide quoted text — Show quoted text – > Hi everyone, I’m new! I’m 30, female, asthmatic since 3 years old > with varying degrees of severity, currently moderate and relatively > well controlled with medication most of the time. > Since I have been living with asthma virtually all my life I haven’t > faced too many problems I couldn’t handle but this one is troubling > me. > I recently married into a family in which all the ladies feel the need > to douse themselves in perfume, hairspray and goodness knows what > else, and not just on special occasions either. They’re also big fans > of room freshener. Naturally as luck would have it I react to all > these things and suffer for hours (sometimes days) after a visit to > the in-laws. I did a search and noticed a lot of you have the same > problem and I was wondering how you deal with it when avoiding the > people concerned is simply not a solution. > Unfortunately they are not the world’s most helpful people and haven’t > picked up any subtle hints (eg me reaching for the ventolin and my > hubby suggesting the prob might be all the fumes!) so I’d like ideas > for managing the situation. My MIL has a friend with severe asthma > and maintains that if this lady can manage at her house, I can – but > I’ve spoken to the friend and her asthma is intrinsic and/or weather > related, not allergic. > Thanks for any help and I hope you’re all feeling well at the moment.
Response:
Hi everyone, I’m new! I’m 30, female, asthmatic since 3 years old with varying degrees of severity, currently moderate and relatively well controlled with medication most of the time. Since I have been living with asthma virtually all my life I haven’t faced too many problems I couldn’t handle but this one is troubling me. I recently married into a family in which all the ladies feel the need to douse themselves in perfume, hairspray and goodness knows what else, and not just on special occasions either. They’re also big fans of room freshener. Naturally as luck would have it I react to all these things and suffer for hours (sometimes days) after a visit to the in-laws. I did a search and noticed a lot of you have the same problem and I was wondering how you deal with it when avoiding the people concerned is simply not a solution. Unfortunately they are not the world’s most helpful people and haven’t picked up any subtle hints (eg me reaching for the ventolin and my hubby suggesting the prob might be all the fumes!) so I’d like ideas for managing the situation. My MIL has a friend with severe asthma and maintains that if this lady can manage at her house, I can – but I’ve spoken to the friend and her asthma is intrinsic and/or weather related, not allergic. Thanks for any help and I hope you’re all feeling well at the moment.
Response:
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